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#MyStory: How I am fighting with Endometriosis

Written By: Infano
September 17, 2020
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I got my first period at the age of 13. Always painful, heavy and irregular. My gynaecologist said the condition will improve with age. And yes, it did. The irregular periods were gone by the age of 16-17. But what never left my company was this pain, this unmerciful and burning pain. I remember sometimes I used to faint because of the pelvic pain and heavy bleeding. I see many girls who play, swim, party and lead a normal life even when they are menstruating. I would say “Girls you must be God’s favourite”.

So, I considered myself a not so favourite of God and started leading my life accepting the monthly challenges. But then my life took another turn. When I was 26, I started getting random cramps. Cramps like mini ninjas were trying to kill me from inside. Getting down from my bed in the morning became like a battle. I rushed to my gynaecologist. And after all the scans and tests, I was diagnosed with Endometriosis, a chronic illness I have to live with.

I had not heard of endometriosis before nor had any member of my family. I had to do my own research by consulting the internet and doctor. Endometriosis is a disorder in which tissue similar to the endometrial tissue (tissue that forms the lining of your uterus) grows outside of the uterine cavity, on ovaries, fallopian tube, bowel, and tissues lining your pelvis. Some of the symptoms I suffered from were:

  • chronic pain during or in between cycles
  • heavy bleeding during periods
  • Fatigue/lack of energy/weakness

Some days can really be hard when the pain is to the extent that I cannot stand up straight or walk properly as the pain is down my legs and up my back. Lying curled up in bed in the fetal position around a hot water bottle becomes a common way of coping.

The treatment my doctor suggested is of combined oral contraceptive pills. These pills contain a mixture of estrogen and progesterone and works by suppressing ovulation and affects the production of female hormones in the ovary. The hormones in the Pill cause the uterus lining to become thinner, causing periods to become shorter and lighter, thus reducing endometriosis symptoms. I have been taking this treatment from past 3 years now with planned breaks in between. I can say that in my case the treatment did not work as effectively as expected. Instead it brought some side effects like weight gain and mood swings.

This is when I had to bring some changes in my lifestyle. And trust me these changes work as add-ons to the treatment.

  • Yoga and workout: There are yogasanas which are specially for Endometriosis pain relief. Workout is important because this treatment can cause an unproportionate weight gain.
  • Avoid dairy products: As suggested by an ayurvedic doctor because dairy products contain hormones which can affect the natural hormone generation of the body.
  • Add green vegetables and fruits in your diet.
  • Positive attitude:  This illness can sometimes play with your mind and you can feel sick and on your own. Don’t fall for it. Go out, spend time with people and try to lead your life as normal as you can. Just take one day at a time.

People often say, “You don’t look sick”. But I am not surprised, even I was not aware of it before. A surprising fact is that approximately 10 per cent of women in India are suffering from this debilitating illness, still, no one knows about it till they suffer themselves. So, I just want to bring this awareness among girls who are suffering from lethal pelvic pain or any other symptom. Don’t spend half of your life assuming that it is just normal period pain and go see your gynaecologist for correct diagnosis before it’s too late.

Share your story with us & we will share it with the world! #MyStory

EndometriosisHealthy lifestyleMenstruationmental wellnessMystorywomenWomen Health

Infano

Infano is a platform that aims to impact every facet of a woman's life - health, career, motherhood, lifestyle, and much more. We are a team of like-minded individuals who wish to be a support to women from all walks of life and in everything they do. Our aim, through our posts and articles, is to bring to light the issues and problems that women face in their day-to-day life, to try and make their life a little easier and a little better, provide the latest news updates of women around the world, and to highlight their big and small achievements. We celebrate womanhood each and every day.

3 thoughts on “#MyStory: How I am fighting with Endometriosis”

  1. Vikas
    September 18, 2020 at 12:28 pm

    Kudos to the strength and Fighting spirit you possess Soumya, I always know you as someone carrying a smile on the face without caring about having things as big as the Galaxy inside your heart.

    #ChudailSoumya.

    Reply
  2. Gesley
    September 18, 2020 at 8:02 pm

    This is a really inspiring share.. You go girl!

    Reply
  3. Sai Jyotsana
    September 18, 2020 at 8:15 pm

    That’s our Girl 🙂 Always high spirited and The strongest 😘 you don’t have any idea that how much you inspire all of us.. Keep inspiring Keep Smiling .. 🙂

    Reply

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Infano Care

ALL YOU WANTED TO KNOW ABOUT POLYCYSTIC OVARIES

Written By: Tasneem Akbari Kutubuddin
May 4, 2020 | 03:30 AM |
1,732
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WHAT IS PCOS

Polycystic Ovarian Disease or Syndrome (PCOD or PCOS) is now a most common problem being diagnosed in women of all ages. PCOS is a condition in which a woman’s levels of the sex hormones estrogen and progesterone are out of balance. This is a main cause of infertility in today’s women. This leads to the growth of ovarian cysts (benign masses on the ovaries). PCOS can affect a woman’s menstrual cycle, fertility, cardiac function, and appearance.

CAUSES

Though the exact cause of PCOS has not yet been discovered, experts and researchers believe that hormonal imbalance is the main culprit. PCOS is more common if someone in the family, especially the mother, has had a history of PCOS. This may mean that the child may also develop PCOS when she reaches her puberty. It may also come from the father’s side. Rise in the level of male hormones (testosterone or androgen) can also be a cause.

SYMPTOMS

  • Irregular menstrual cycles- less than nine cycles in a complete year or no periods at all
  • Excessive bleeding
  • Acne outbreak
  • Rapid weight gain
  • Painful abdominal cramps
  • Growth of facial or body hair
  • Hair-fall from scalp
  • Spike in insulin levels in blood
  • Failure to conceive

HOW TO DETERMINE IF YOU HAVE PCOS

If a woman has the above symptoms, then a visit to a gynaecologist can help determine if she is suffering from PCOS. The doctor may ask for the patient’s medical history, conduct a medical examination. An ultrasound of the ovaries can confirm the presence of cysts. Hormone testing may be prescribed to check imbalances, and after identifying the cause, a treatment plan may be suggested to suit the cause best.

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Ruchee Anand, director, talent and learning solutions, India, LinkedIn.

WHAT HAPPENS WHEN PCOS IS LEFT UNDIAGNOSED

Because of fewer ovulation cycles, the rate of pregnancy naturally decreases in women. If left undiagnosed or untreated, the patient may not be able to conceive normally and this may cause infertility. Knowing the cause of infertility helps the doctor to come up with a suitable treatment plan for the patient. In many cases, just regulating the hormones can help in attaining regular menstrual cycles which in turn can help in conception. And if conception is the plan, then this should be discussed with the doctor beforehand.

A spike in insulin levels in blood is also noticed in PCOS patients and if this is not regulated, weight gain and facial hair can increase. High level of androgen and testosterone hormone can also cause an increase in insulin and vice versa and this can increase the chances of developing diabetes and insulin resistance.

TREATMENT

  • Hormone pills may be prescribed to help attain regular cycles
  • Fertility drugs help in regular ovulation
  • Lifestyle changes including proper diet and exercise are mandatory to control PCOS
  • Metformin is prescribed in case of high insulin levels
  • In adverse cases, laparoscopic surgery helps attain regular ovulation.
CausesPCOSPolycysticsymptomsTreatment

Tasneem Akbari Kutubuddin

Tasneem Akbari Kutubuddin has done her masters in Journalism & Communication and has worked as a senior journalist, editor and columnist for leading publications like The Logical Indian, Deccan Chronicle, Worldwide Media Corporation, The Bridge and Provoke.
With Infano, she hopes to create more awareness about women’s health issues. Suffering with Fibromyalgia, a chronic pain condition, she has also been advocating for its awareness through media.

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